Update: Joey is quite feverish and nauseous today. Trying to find the source. He has had chest x-rays and blood drawn, but on a good note he had his central line removed!! He did sit up in a chair today for about a half hour and got a lovely sponge bath :) from a very cute girl...his nurse wasn't bad either LOL! He even got his hair washed. That did make him feel better...for a while...then back to sleeping most of the day. We are trying to keep him moving from side to side so he does not get fluid build up. Unfortunately, our efforts have failed here. He does have fluid build up, but I think we can manage this without him getting worse. Please pray for a peaceful night for him. Nighttime seems to be his worst.
Keep those posts coming. It's helping me as much as Joey. Love to all.