Joey actually got his bath in the bathroom last night! He washed his hair in the sink and even asked me to blow dry it :) I think he just liked the warm air blowing on him. He is so funny. He's sitting in the chair just smiling away. You would have thought this was an everyday event for him. Let me tell you, with all of the crap that is going through him and all of the stuff we make him to, he is just incredible. He hates to complain. Everytime he does, he's apologizing to us. You talk about inspiration, he is mine. Now I have to live up to his toughness!!

Joey's night was a little better. His sleep was so sound during the day yesterday, that the nighttime was more in and out. I, however, had the best nights sleep (here) yet. I slept 4 hours in a row! That felt like a whole night's sleep!! We got Joey up at 3 and moved him around. His left arm is so swollen that I asked what they could do about his IV. They moved it to his right arm (Don't worry Jenny, it went really well, unlike the past efforts to find a vein!!). They decided he needed a sonogram on his left arm because of all of the fluid build-up. So, when do they decide to come get him for this test? 5am! Yup, my thoughts exactly! I didn't even hear them come back they were so quiet. Dr. Rutstein came in at 7 and made the decision to remove his epidural to hopefully "wake up" his bowels. Once they wake up, the tube that runs through his nose to his stomach will be removed. That will be a day to celebrate...could be tomorrow even...Keep those fingers and toes crossed for us!! With the removal of the epidural though, this means constant movement for him and less pain meds. Not sure how this will go, but if he keeps in his mind that this tube is going to be removed, you just might see him dancing down the hall!!
Will post more this afternoon.